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Welcome to our website #2 poem
University of Indiana followed my mother's decline and began a family review soon they added me to the research and now my children are hopefully finishing blood tests to be in review. I also suggest if it is in the family to begin ginko biloba,vitaminE, folic acid, B vitamins plenty exercise and eating right. Of course this is not professional advise just what worked for me and others. Always check with your doctor. Since it is familial it is good to follow closely the journey of persons with dementia (PWiDS) however that does not mean because you have it in the family you will also be diagnosed. There are many things causing memory loss and with
testing can be cured. Never be in denial get to a doctor to take care of the problem or get on medications when they help the most. Life with dementia can be a new journey of life and not a death sentence.
Alzheimer's is Familial says research
My mother passed with Alzheimer's after a 17 year struggle. She had no medications and was cared for at home until she needed a carehome to be safe. Why no meds is still a hard subject. Indiana University did her autopsy and it was Alzheimer's. All her children and grandchhildren visited her regularily. Soon this was her home and she did not want to even leave for her special chocolate milkshakes. I am sure watching her made me realize my problems even before the doctors could admit I could have the disease even at 54 which was early in 1995 but should not have been. Now earlier diagnosis is being recognized and there are 500,000 with early diagnosis and many more looking for one.
Family Denial
My wonderful five children and significant others saw me as the same mom I was
with maybe some getting old symptoms. It was then and when other people began to say you don't look like you have Alzheimers I wrote a poem (well sort of a poem) to get my feelings on paper. Thank goodness now it is different and all are very supportive of my journey and make me feel very loved and understood.
You Don't Look Like You Have Alzheimer's
You Don't Look Like You Have Alzheimer's
The hardships of having to convince
Its's not what you see it's what I know is missing
I may not look different and I am still me
but some changes have taken place in my brain
I still love children as much or more than ever
I just like them less at a time for a shorter time
I still love people with all of my heart
but crowds are disasterous to me
I love going shopping or out to eat
but clanging silverware, loud music and people talking at the same time
set my mind whirling
My music is important
but day to day it changes on how much, how loud and what kind
Doing things is still fun for me
it is the planning that is too much
Although I still have opinions
decisions become stressful to me
The track my brain follows can only carry one thing
If a second or third tries to climb aboard I loose all three
I have a hard time speaking my mind
and often it comes out rude but not meant to be
I lose track talking to you or what was said
so reminders make me ok with this
My brain gives me the best service when not tired or confused
and many more things make me tired and confused
I seem to get crying spells for no reasons
a kleenex will do as this will pass
I love life but that does not mean it is easy for me anymore
I just want to be understood and loved
I am still me but I do have a disease
Jeanne L. Lee
Welcome to our website
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