Our Champion Dylan
Front page
My guestbook
Dylan's Album
San Diego Photo's
San Diego June 2008
Fundraising Updates!
Jacobsen's Syndrome
Trisomy 9p
Thank You Page
Useful links
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Guestbook
Thanks for visiting my page. Please sign my guestbook and leave a message. Don't forget to add a photo if you have one.
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Written by
Heather
on
Nov. 21, 2009
Hi Marie,
I took the liberty of adding your wonderful site about your delightful little Dylan to the blog roll of Erin Kewer's blog (the link listed). Hope that's ok!
Hope you guys are doing well, feeling better...
Hugs,
Heather
E-mail:
Website:
http://www.jacobsenssyndromeawareness.com
Written by
Kirsten Harper
on
Nov. 10, 2009
Hey Dylan!
I'm missing you, hopefully I will be able to spend the last week of term down at Sandon with you.
Hope to see you soon
<3 Kirsten
E-mail:
Written by
Gayle & Olivia Purdue
on
May. 5, 2009
Hi Guys,
We were very excited to check out your website and to learn you live in Australia. We are in Humpty Doo (yes it is a funny name, but really is a rural town in the Northern Territory). We would love to keep in contact with you and share our stories. We have added a photo of ourselves for you and look forward to an email.
Cheers
Gayle & Olivia
This is my mum, dad, brother Jacob and me.
E-mail:
Written by
Afryka
on
Apr. 26, 2009
Great site you guys! Hope you're having a great weekend.
Written by
Aunty Debi
on
Dec. 29, 2008
Hi Dylan and Marie
Wow...how clever are you to have this great site. I saw the link on facebook and had to have a stickybeak. This is a great way for Dylan and all his overseas and Oz buddies to keep in touch. We all hope your New Year is full of fun, laughter and happy times and we look forward to seeing you soon :)
Love Aunty Deb and Uncle Rod
E-mail:
Written by
Payton & Kensyn Hardey
on
Nov. 10, 2008
HELLO !!! our gorgeous cousin :) we love you and are having fun looking at your pictures, can't wait untill we can play again soon!
When can we play?
E-mail:
Written by
Dawn & Taylor Marie
on
Nov. 6, 2008
Hi Dylan & Dylan's mummy Marie. My daughter also has Trisomy 9p. We just thought we would say a big hello from Oregon.
Hi, I'm Taylor Marie. I also have T9p. This is my sign for grapes.
E-mail:
Written by
Felicity and Leah Cannon
on
Oct. 21, 2008
Hi Dylan,
We love your website and have been looking at all your cool photos! It looks like you loved Disneyland and love Goofy! Leah and I can't wait to meet you.
Take care buddy!
Felicity & Leah
E-mail:
Written by
Erin
on
Oct. 10, 2008
Love your website. My daughter has Jacobsen's Syndrome she i 2 1/2 yrs old. I would love for you to stop by and check out our site.
E-mail:
Website:
www.jacobsenssyndromeawareness.com
Written by
monica mom to Sarah
on
Oct. 3, 2008
hi there we live in Ontario Canada Sarah has 8p23.1 deletion and we visited your site and are saying hi all the way from Canada
E-mail:
Written by
aunty jenny
on
Jul. 26, 2008
hi dylan this is aunty jenny you sure look good now and yes your mummy did a good job setting up your web page.
did you have fun at disneyland i hope you did.
i wont be at the school for a couple of weeks as i am on holidays now so i will see you when i get back ok we all love you and mummy lots
love aunty jenny
E-mail:
Written by
Mummy
on
Jul. 7, 2008
Hi Everyone Thank you so much for all your messages it was great to hear from you all while we were away!
Dylan had a great time meeting all the families and we learnt alot of new information at the conference! Then as you know we scooted off to disneyland which was just fantastic!
The whole experience was incredible and I will be putting info on this site as I read through my notes and sort my thoughts out, im still just buzzing from the whole thing!
Thanks again to everyone who made this possible!
xxxxxx
E-mail:
Written by
Emma Riddell
on
Jun. 28, 2008
What a special little boy you have! I found the link on the Special Needs Group on Face book, Dylan is a superstar ! The fund raising you are doing is amazing well done!!
This Is Grace who also has a chromsome Disorder called Smith Magenis Syndrome
E-mail:
Website:
www.graceriddell.co.uk
Written by
Fitty, Tony, Jacob & Savannah
on
Jun. 28, 2008
hey hey, hope all is going good and that you all are having a good time and finding what you are looking for. take care.
E-mail:
Written by
booka
on
Jun. 28, 2008
hello from me and wazza whos here with me now,glad to see you are all havn fun enjoy the rest of the trip.regards booka and wazza.
E-mail:
Hi!
Try to make your own website just like me.
It's easy, and you can do it absolutely free.
AD