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Useful Links
The following are some websites that I think are useful or meaningful to us.
Have a look and let me know if there are any problems!

Cheers
Marie

Dylan's Facebook group
http://www.facebook.com/group.php?gid=8730238014

Unique (Rare Chromosme disorder support group)
http://www.rarechromo.org/

Unique's facebook group
http://www.facebook.com/group.php?gid=6069678227

Abigail's Website (Abigail also has 11q)
http://www.thebernardbunch.blogspot.com/

Christopher's Website (Christopher also has Trisomy 9p)
http://www.trisomy9.org/journal.htm

Maggi's Website (Maggi has Trisomy 9 Mosaic Syndrome)
http://www.maggiblair.com

The 11q website (one of there are links on here for more)
http://www.11qusa.org/

Songs of Love
(a wonderful organsitation that writes and produces songs especially for children up to the age of 21 who have a life threatening illness or lifetime disability.)
http://www.songsoflove.org/

Unique, Fact sheet on Trisomy 9p (Titled duplications of 9p)
http://www.rarechromo.org/information/Chromosome%20%209/Duplications%20of%209p%20FTNP.pdf

Unique, Fact sheet on 11q Jacobsen's Syndrome
http://www.rarechromo.org/information/Chromosome%2011/Jacobsen%20FTNW.pdf

A website all about Jacobsen's Syndrome.
http://www.jacobsenssyndromeawareness.com/home

Trisomy (SOFT USA) 

Trisomy (SOFT Australia)

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Latest comments

19.06 | 00:43

Thank you Donna we think you guys are pretty awesome too!! We will keep Maggi's link on here as well. We are all doing well and hope you are too.

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18.06 | 23:17

We send you out love and think that you are awesome parents. We still have Dylan's page as a link on Maggi's website. We pray this finds you all doing well.

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18.03 | 08:41

Not sure how to leave my description and request to join. Can you tell me how. I will explain our situation in a private message first. Thank you so much

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19.02 | 16:32

This helped alot! just to be sure, this is a genetic disorder? I am doing a school project on it.

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