The following are some websites that I think are useful or meaningful to us.
Have a look and let me know if there are any problems!

Cheers
Marie

Dylan's Facebook group
http://www.facebook.com/group.php?gid=8730238014

Unique (Rare Chromosme disorder support group)
http://www.rarechromo.org/

Unique's facebook group
http://www.facebook.com/group.php?gid=6069678227

Abigail's Website (Abigail also has 11q)
http://www.thebernardbunch.blogspot.com/

Christopher's Website (Christopher also has Trisomy 9p)
http://www.trisomy9.org/journal.htm

Maggi's Website (Maggi has Trisomy 9 Mosaic Syndrome)
http://www.maggiblair.com

The 11q website (one of there are links on here for more)
http://www.11qusa.org/

Songs of Love (a wonderful organsitation that writes and produces songs especially for children up to the age of 21 who have a life threatening illness or lifetime disability.)
http://www.songsoflove.org/

Unique, Fact sheet on Trisomy 9p (Titled duplications of 9p)
http://www.rarechromo.org/information/Chromosome%20%209/Duplications%20of%209p%20FTNP.pdf

Unique, Fact sheet on 11q Jacobsen's Syndrome
http://www.rarechromo.org/information/Chromosome%2011/Jacobsen%20FTNW.pdf

A website all about Jacobsen's Syndrome.
http://www.jacobsenssyndromeawareness.com/home